Tuesday, January 25, 2011

Tubes, Tonsils and Therapy

We went to the ENT yesterday because last week at the pedi she said Kai's tubes were out and he had/has an ear infection. So we started antibiotics and made an appointment with the ENT. Well the tubes are definately both out, so he will be having surgery to have them put back in and also to have his tonsils removed. Dr A said that they were a little inflamed and swollen which is probably contributing to the periodic apnea I hear over his monitor at night. Last surgery was tubes and adenoids and we were done and out of there in a couple of hours. With tonsils we have to stay the night in the hospital. Boo for that. I am glad that he will be having the surgery and staying at the Children's hospital that I work at, it adds a level of comfort. He also said he would be using T tubes this time and they should stay in longer than the 6-9 months we have been getting out of the other 2 sets. Which is nice seeing how I am still paying for the set that just fell out!

As far as therapy, we have feeding therapy today. Last week the therapist decided he needs two days a week of this instead of one. That makes me happy and sad at the same time. I am happy because I have been asking for help with his eating of table foods for almost a year now but I am sad that he needs 'more' a week. You really dont realize what you take for granted until you go through something like this. I never would have thought I would have to teach someone how to eat and that it would take over a year to do so. He has always done so well with all his other milestones motor-wise, but eating table food and speech has us stumped. Some days I feel like he will never eat anything other than purees and that he will never talk. The never talking really scares me. I cant wait to hear his first words in his sweet voice. I cant wait for the day we all sit down at the dinner table together and eat a meal together.

It really is the small things in life.

That is all.


  1. I agree with everything you said about the feeding issues. That's exactly how I feel.

  2. I was curious what progress you've seen made in feeding since the tonsils have come out. Our boy is about to turn 2, he's G-tube fed and the doctors have decided to remove the tonsils and the adenoids to help with his breathing, sleeping and hopefully feeding challenges. I'd never thought we'd still be trying to teach him to eat.